Orange County Launches “Dementia-Friendly” Initiative
On Wednesday at the Seymour Center, Orange County officials announced the launch of a major initiative that will make our community one of the most welcoming in the nation for patients and caregivers living with dementia.
“This is an exciting day for us,” said Janice Tyler, director of the Orange County Department on Aging. “We (in Orange County) are the recipient of a $900,000 Alzheimer’s Disease Initiative Specialized Support Services grant, which will be administered over the next three years.”
The funding comes from a federal project called the Dementia Friendly America Initiative, launched in July at the White House Conference on Aging. Orange County is one of only 15 communities nationwide, and the only one in the state, to be selected as a recipient of this initial round of grants.
The funds will be used partly to enhance a variety of programs Orange County already has in place.
“The funds for this grant will specifically target caregivers and residents with Alzheimer’s and related dementias,” says County Commissioner Earl McKee. “This money will enable the county to expand services and support, and we want to do all we can to assist these individuals and their caregivers – and also their friends and families – to reduce isolation and improve their quality of life.”
But more than that, the grant money will also help Orange County launch a program called the Dementia-Friendly Businesses Campaign. Inspired by similar efforts in other communities, the program will encourage Orange County businesses to get certified as “dementia-friendly” by having their staff trained in how to recognize the signs of dementia and how to address the particular needs of caregivers and dementia patients.
Lorenzo Mejia is the owner of Acorn Homecare Services; he’s been working to launch the program, with the help of the East Chapel Hill Rotary Club. “Today we are launching something amazing,” he said Wednesday. “The Dementia-Friendly Business Initiative trains local businesses in what dementia is, how to recognize it, and how to interact with customers that might have it…
“And this is huge. If salespeople appreciate that big menus with lots of options can be intimidating, or that a credit card terminal is daunting, it can have a profound impact on how people experience that business. It’s a place they’ll feel comfortable visiting, and they’re going to tell their family and friends.”
Officials say projects like the Dementia-Friendly Business Campaign will only become more essential as the American population continues to age. An estimated 5.4 million Americans are living with Alzheimer’s Disease today, and that number is expected to grow to more than 7 million in the next 10 years. One out of every seven live by themselves. In Orange County alone, about 2,500 residents suffer from Alzheimer’s and related dementias – and McKee says the impact is far-reaching.
“It affects not only that person (with dementia), it affects their family, it affects their friends, (and) it affects the community,” he said Wednesday.
That sentiment was echoed Wednesday by Linnea Smith and Bobby Gersten. Bobby Gersten is UNC’s oldest living former basketball player; Linnea Smith is a psychiatrist and the wife of legendary basketball coach Dean Smith – and both have known the experience of caregiving for a spouse struggling with dementia.
“Your life is never the same,” said Gersten, who cared for his wife Libbie. “It takes two professional caretakers to get them out of bed, to get them to the bathroom, to get them to the dining room, to help them eat – it’s just something you’re never, never going to be ready for until it happens.”
Bobby Gersten speaks at Wednesday’s press conference. (Photo by Aaron Keck.)
Smith agreed. “Alzheimer’s and other dementias present enormous challenges,” she said. “They’re chronic, progressive, and terminal. It doesn’t matter how successful an individual is, or how well known, or how remarkable his memory. It doesn’t make one exempt…
“It is a family disease, and it takes a village to provide care.”
Listen to Linnea Smith’s full remarks.
Officials say they’re hoping the Dementia-Friendly Business Campaign will help expand that “village” in a real and meaningful way. Ten businesses have already signed up, and Mejia says he’s hoping to add a hundred more to the list in the next year.
At the Department on Aging, Janice Tyler says that will make a huge difference. “The quality of life for this sector of our population will improve immensely,” she said Wednesday, “as a direct result of these federal dollars.”
If you’re a business owner in Orange County and you want your business to become Dementia-Friendly, it’s only a 2-hour training session away. For more information, visit DFOrangeCounty.org.
Businesses that have already signed on to Orange County’s Dementia-Friendly Business Initiative:
The Animal Hospital of Carrboro
Carrboro Family Pharmacy
Chapel Hill-Carrboro YMCA
Chapel Hill Public Library
Fidelity Bank of Chapel Hill
Law Office of Colin K. Austin
Maitland Law Firm
Help For Alzheimer’s Caregivers, From Home Instead Senior Care
CHAPEL HILL – According to a recent survey, nearly two-thirds of Americans have had a personal experience with Alzheimer’s disease—and more than 60 percent of Americans say they feel unprepared to care for a loved one who’s diagnosed with Alzheimer’s.
“I just don’t know that you’re ever really prepared, unless you’ve walked through it before and seen the toll that it takes,” says Stephen Lair, the franchise owner of Home Instead Senior Care in Chapel Hill. “It affects the whole family.”
This week, Home Instead is offering a series of classes designed for family caregivers to help cope with the disease while keeping their loved ones as comfortable and safe as possible.
“What we’re trying to do with our Alzheimer’s program is give family members the tools to be able to engage their family members all throughout the process (of the disease),” Lair says.
The program is called Alzheimer’s CARE, or Changing Aging through Research and Education. The classes are free; they begin this week Tuesday in Chapel Hill and continue on Thursday, from 6:00-8:30 p.m.
Lair says the time commitment is worth it, because these classes speak directly to what caregivers need to know to cope on a day-to-day basis.
“A lot of training (tends to be) very cerebral,” Lair says. “It talks about how the disease progresses and what the stages are. But what we find is that family members want to know, ‘okay, that’s great, I know how the disease works, but how do I get my dad to take a bath? How do I manage those behaviors that become difficult as the disease progresses? How do I continue to connect with him once he starts losing such large chunks of his memory–and losing chunks of who he is?'”
The training sessions are designed to walk people through the various stages of caring for someone with Alzheimer’s. Lair says the best approach, at any stage, is simply to try to engage the patient “in their world.”
“I think a lot of people, when they’re dealing with Alzheimer’s, they’re consistently trying to bring people back,” Lair says. “(They say) ‘if I play a certain music or say a certain word, something that’s familiar, then there’ll be a moment of clarity’–and that may sometimes exist…(but) rather than (trying to) bring them back, you (should) just accept the reality of, ‘where they are in time is not where I am in time. Even though he may be 85 right now, he’s remembering things (from) when he was 60, 65 years old. And that’s what his world looks like.'”
Lair says the “Alzheimer’s CARE” classes are designed to teach people how to engage Alzheimer’s patients in that way. He says one of the most effective tools is something called a “life journal.”
“(It’s) something where, throughout the early stages of Alzheimer’s, you begin to gather information about who the person is at all the different stages of life,” he says. “So as they regress through Alzheimer’s and they lose more current memories, you can still engage them in their world, in their reality.”
Classes run from 6:00-8:30 Tuesday and Thursday at the Chapel Hill-Carrboro Chamber of Commerce office on Estes Drive. If you’d like to sign up for the free workshops, visitHelpForAlzheimersFamilies.com
, or call Home Instead Senior Care at 919-933-3300.